I’m almost afraid to mention that we are all caught up with vaccinations and did fairly well with some minor cold symptoms this month. This was the first time I feel like he was sick and I let it pass without making a visit to the pediatrician for clearance. I really feel like he is definitely stronger and able to handle some germs. Although every time I see and hear people cough or sneeze or just sound sick I still get that panic feeling like please have some respect and try to keep the germs contained in your space. Our next cardiology appointment is in February 2014 (knock on wood) unless there are any pressing changes.
Cameron finally gave up the BaBa (with a fight of course) and he is fully potty trained!!! It was harder for Mama to let the hours or it felt like days go by keeping to our guns on giving up the bottle when he was desperately looking for it at night. We had a mature talk with visual aids (pictures Mommy tried to draw) about what is expected from big boys: No more bottles only cups and we must eat food instead of only milk as well as no more diapers only underwear/pull ups and always using the potty. If Daddy didn’t support/handle the bottle shutdown I probably would not have had the nerve to cold turkey the BaBa. Especially after all Cam has been through with medical expectations and restrictions concerning fluids. Also, we need him to keep up his weight as of now we are reaching for close to average weight. Cam is drinking full pediasure which is like a milk shake to help with weight gain. Cam had a few melt downs and tantrums over the change but has come to find comfort in some very specific types of cups instead of the bottle. He does drink from straws and regular cups it is more of a comfort thing at night, I believe anyway. The food situation is better, he eats like a crazy man here and there but all in all a very picky toddler when it comes to meals. Maybe it’s because I stress over meals and am concerned about the weight expectations or requirements. I feel that he pushes back at me specifically but I really try my best. The potty training is complete, I found out that sticker rewards and praise can motivate and work for this task as well as mommy sneaking toys home. All the talk about ‘he should be doing this’ and ‘not be doing that at this age’ can throw something new at us now, this little man is incredible and can certainly handle it like a champ!
Cameron had the honor of being the ring bearer in a dear friends’ wedding. Cam walked down the isle accompanied by the sweetest flower girl and they were meltingly cute! I have to state the obvious, Cam was just obnoxiously adorable in the little tuxedo. The beautiful bride and kind groom gave us a wonderful experience to share with Cam; especially with the second line down the streets of New Orleans Who Dat!
Thanksgiving came and went too fast it was great bringing Cam out to have the family enjoy him. I still take Cam on adventures as many as I can handle. I know its super risky taking him out into public germs, but I feel like he deserves as must joy and life one can offer. Personally I honestly don’t need a holiday to remind me to say I’m thankful for life because every time I look at Cameron I know we are blessed to have him and share each day/hour/minute/second in love. Thank you all for the continued support and prayers, we appreciate all of the considerations put forth for our family. Happy Thanksgiving!!!
We had an amazing holiday month of fun and true joy, it was most enjoyable! We did several Halloween events almost every weekend it was a blast to just go… We did the traditional trick or treat on 2nd Street by our house for the real deal, ghost in the oaks, boo at the zoo and Grandma Tricia took him to Jelly Stone park for that huge incredible Halloween event. Cam finished another season of Soccer Tots and he got a trophy. We also enrolled him in Gymboree for some social interaction with kids. We attended a most beautiful beach wedding with some great friends making an incredible vacation. Also, at the request of another Heart Warrior Ethan’s family we sent a balloon to heaven wishing an Angel ~ Happy Birthday.
Cam is well now; however, we did have a few weeks with a minor cold (runny nose/cough) but it just past over time. We also got a flu shot and one more vaccination this month. I think after one more shot we will finally be all caught up on vaccinations. We spaced them out intentionally not to overwhelm Cam’s heart and body usually we would try 2 vaccinations a month.
Cam is getting so big so fast and really talking great for his age so I hear very often from others. He is still in love with monster trucks and is always ready to play inside or outside or wherever. He has a great source of energy you couldn’t tell the difference from a normal kid as he never wants to slow down. I had noticed his skin color slightly blue one cold afternoon and I am a weather monitor now. As usual I will continue to post monthly about our growing heart warrior and (again again and again!) thank you all for the continuos support and prayers for our family. We really are cherishing every single moment with Cameron, I cannot personally stress the extreme love I have for this miracle of life.
Cameron had a circumcision in the beginning of September. It was a minor surgery and it went fine. Momma Mogg was a little (maybe a lot) upset over going back into the hospital but Cam was a big brave boy and did great. They gave him silly juice to help him relax but it was still extremely hard to give him over for the surgery. Cameron was of course upset right after surgery but he was a real champ handling it all. Once we got home he didn’t miss a beat ‘I wanna go play!’
Now the aftercare was an experience I have to admit but Cam was a very good patient for Mommy, I’m very proud of my little angel! The Doctors orders were to have three baths a day after the bandage came off until all was clear in the area. We had to get very creative with getting him in the tub so many times. We started painting and making a mess to clean up and need bath again and again and again. Also, we had a lot of ice cream, suckers and donuts to help sooth the pain.
We couldn’t have this procedure done at birth like most would only because it wasn’t good for his body and heart. They explained that the body needed to focus on his heart and that’s a huge job. Also, putting that extra stress on him would not be ideal. He would need all his strength at birth especially with the first heart surgery in waiting. Anyway glad that’s all over now onto the fun stuff until next time…
We had Cameron’s cardiologist visit at the end of August. The results that they could see from the attempted echo from a live and much awake 2 year old were good enough to give us six more months until our next cardiology appointment. We practiced Doctor at home for weeks before this event checking Cam’s heart, temperature and even giving him a fake echo by rubbing his chest. However, Cam was still upset about laying down for the echo (Maybe he thought he was getting a shot?). But he was great with the check up letting the nurses take vitals and all three Doctors listen to his heart. (You would think he would remember those white coats on the Doctors…) Anyway Cam’s blood oxygen saturation levels have been in the good-normal mid 80s and he has reached a healthy 28lbs.
Mommy is working late nights on getting past the overnight milk bottles. I think it is just a learned routine from the Norwood and keeping him hydrated during Interstage. Also, after the Glenn and the pleural effusions where he was starved until certain hours having to eat when we had fluids available to feed him due to restrictions. But all that change is still in the works, its hard on Momma to say ‘No’ to the bottle requests after all that trauma.
On a lighter note, we tried out the Soccer tots program for toddlers and it was great watching him run around and play along side with the other kids. Now he is starting to share and be nice with kid company and it’s great to see him finally get that interaction. Cam is just doing amazing growing so fast and furious, it hits me harder and harder every time I realize he has reached or mastered another goal or millstone.
As always thank you for the continued prayers and support for our family. I can never say this enough and will always try to openly share my gratitude. I will try to post monthly on this page for those who are still following our Baby Mogg journey as well as have a journal for Cam some day.
Another fast month… Cam is really getting so big! No changes to add to the list yet… The cardiologist appointment is still set for the end of August. We had a bad run with a virus but Cam was a champ handling it. However, Mommy did not enjoy getting sick too. Anyway things are all clear now and we are looking forward to getting back to our adventures.
We had another fast month go by with the celebration of Cameron’s 2nd Birthday. We tried to do a small kids party with a monster truck theme hosted by Grandma Tricia Mogg (Thank you!). Monster trucks is his favorite thing right now and he loved it! Cam really enjoyed sitting at the decorated table with all those kids (the most kids he has ever seen or been around close up – I feel like). I’d like to thank everyone who celebrated with us Cam turning 2 and everyone that couldn’t make it out but sent their love and wishes. It was a joyful event and yes I did cry a few times, just couldn’t help myself.
Cam really is a beautiful and strong spirit amazing us every day. He has a big vocabulary now and he knows his colors very well. Nothing else has changed for us as of now. We have an echo scheduled for late August and will have more information after that test. I can never thank everyone enough for all the continued support and prayers for our family! Again a special thank you to all the Doctors and Nurses as there are not enough expressive words of appreciation that I can find. Thank you, thank you for Cameron!!