March 2014

4 Apr

March was a very busy month we made it to two monster truck shows, a motorcycle show, a dog parade, a St. Patricks day parade and the heart walk in Mandeville with a crawfish boil. Things are looking good with Cam I have asked about the date for his up coming surgery this summer, and all they said was we will need a cath done a month before then they will use that information to make the plans from that point. We are pretty much expecting the sedated cath be in June then scheduling the open heart surgery, Fontan procedure, in July or August 2014. Cam is really just a doll getting into Super heros, board games and just the adorable kid stuff.

The Cameron Monster Truck TShirts looked great at the heart walk. I’d like to thank everyone who participated in the event supporting our heart hero! There is an order open until April 14th for anyone who wants a Cameron Monster Truck TShirt. You can order and pay at the website below, they will be delivered to you after it closes. If you have any questions just email me at babymogg@gmail.com

http://www.booster.com/babymogg

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Cameron Monster Truck TShirts – April Order

18 Mar

April Order>>>

http://www.booster.com/babymogg

Success! We sold most of the TShirts in the box we ordered for the Heart Walk on March 29th 2014, Thank You! We hope to see everyone out there at Fountainebleau State Park Saturday, March 29th 9am-12pm with their awesome Cameron Monster Truck TShirts! The non-competitive walk starts at 10am and we hope to get some great pictures of the team! We are ecstatic to have reached our goal and donate to the Heart Walk; because without funding for research Cameron would not be here with us today and that’s just well heart breaking to think about so know that your donations and support are much appreciated here!!!

If you wanted to order a Cameron Monster Truck TShirt and don’t mind waiting until late April you can submit an order through the booster/babymogg link below. These donations will go directly to Baby Mogg Medical Fund. We are waiting to schedule Cameron for his third open heart surgery, the Fontan procedure, this July or August 2014. We will post more information here as it comes to us for those who are following our story.

http://www.booster.com/babymogg

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February 2014

9 Mar

Well as I have posted before February 16th 2011 was the day we went to the echo appointment to find out about Baby Mogg and his HLHS condition. It was an extremely emotional and hard day I will never forget hearing that devastating news. Anyway, this come February we are getting some new Baby Mogg news that Cameron will need to be scheduled for his third open heart surgery come this July or August 2014.

We were expecting this news seeing his age and weight are in the area for this type of surgery called the Fontan. This is the third and hopefully final surgery to rework Cam’s heart so that we can enjoy his life as long as possible. I get many questions like ‘Is this the last surgery?’ And it’s a ‘We sure Hope and Pray!’ Answer… However, I have heard that sometimes when things get severe down the line if there are extreme complications a heart transplant would be considered; but that’s only if things get bad and again we Hope and Pray it doesn’t ever get to that point ever.

Last month we had enjoyed some parades, zoo day, soccer tots and many more Cam adventures I’ve posted more pictures below. March 29th 2014 we are attending the Heart Walk at Fountainebleau State Park Mandeville La 9am-12pm. Any Supporters are welcome to join us. We are raising funds for the walk with our Cameron Monster Truck TShirts @$20, if your interested email us your size order babymogg@gmail.com See post below for further details and information about the TShirts.

Thank you again and again and again for the continued support for our family. We will post about his surgery when we get a date and/or if any new information is given to us.

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Cameron Monster Truck T-Shirt > Heart Walk Orders

27 Feb

Greetings,

Donate $20 and get this one of a kind T-shirt to support Cameron aka Baby Mogg (while supplies last).  Funds will go to the American Heart Association for the Heart Walk on Saturday, March 29th 2014. We welcome anyone to come out to the heart walk to support Cam.  It will be held at Fountainebleau State Park Mandeville La Saturday, March 29th 2014 9am-12pm. Hope to see y’all there and try to wear something red if possible or grab a Cameron Monster Truck T-shirt at the event.

Please share this link (BabyMogg.Wordpress.com) with anyone who you might think would be interested the more the merrier, thank you!  If you know anyone who may want to sponsor our team we are interested and would like to hear from you just send us an email.

We will do our best to hand the TShirts out prior to the event so that we look like a strong group at the walk.  Payments are now being accepted and can be given to Amanda (Momma) Mogg or online debit/credit card payments can be made through Paypal using the ‘Donate’ link below.  If you really want the T-Shirt(s) mailed to you please add $5 to the donation for that service and note a mailing address for delivery.  Also, if you pre-ordered or requested a TShirt size from our sign up link prior to March 1st 2014, I have your email information and will save you that size.

If you have any further questions please do not hesitate to ask… Babymogg@gmail.com

  • A Pay Pal account for Baby Mogg Medical Fund is now set up to accept online donations, to Donate via Pay Pal click the button below – Enter the Donation Amount and click on the Update Total Button. You can select the Login To Pay Pal if you have an account or click on the Continue link next to “Don’t have a Pay Pal account?”

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Happy Heart Day

14 Feb

Happy Heart Day!!!

Donate $20 and get this one of a kind T-shirt to support Cameron aka Baby Mogg. Funds will go to the American Heart Association for the Heart Walk on Saturday, March 29th 2014. We welcome anyone to come out to the heart walk to support Cam. It will be held at Fountainebleau State Park Mandeville La Saturday, March 29th 2014 9am-12pm. Hope to see y’all there and try to wear something red if possible or grab a Cam Monster Truck T-shirt at the event.

Please share this link with anyone who you might think would be interested the more the merrier, thank you! If you know anyone who may want to sponsor our team we are interested and would like to hear from you just send us an email.

PreOrders will close March 1st, 2014>>

http://www.customink.com/signup/5h4jnoj0

  • A Pay Pal account for Baby Mogg Medical Fund is now set up to accept online donations, to Donate via Pay Pal click the button below – Enter the Donation Amount and click on the Update Total Button. You can select the Login To Pay Pal if you have an account or click on the Continue link next to “Don’t have a Pay Pal account?”

 

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Happy Heart Week

11 Feb

February 7th-14th is CHD awareness week! During this week many find ways to promote and generate Congenital Heart Defect awareness so that it will hopefully lead to more research and development for the heart community for the future. I am personally thankful for all the current available information on HLHS, it has all had a major influence on our journey with Cameron. I will be using much of the information we have found to explain where we are now with Cameron aka Baby Mogg.

Hypoplastic Left Heart Syndrome occurs when parts of the left side of the heart (mitral valve, left ventricle, aortic valve and aorta) do not develop completely. Cameron has previously had the Norwood and Glenn procedures which is two of the three heart surgeries needed in our situation. Stage III the Fontan procedure was definitely the topic of our appointment yesterday with Cardiology. Cam was scared and afraid during the testing for his Echo, but he did well after a discussion and sitting on top Momma. Cameron will be getting scheduled for the Fontan come July or August this year, I will post a date when it has all been confirmed.

Cam’s weight and age play an important factor in this decision. The Doctors would like to see Cam around 33lbs for surgery and that’s the goal. We are still giving came full pediasure to help with weight gain. Also, Cam eats well but I feel like I struggle with pushing on the expected pounds. I’m constantly on poor Cam… Do you want something to eat, Are you hungry, Do you want a snack, Please eat, Would you like to eat again? I feel like I’m going to encourage a serious eating disorder for this poor child! Anyway… they say the bigger the baby the more they have to work with for surgery and that’s best.

After the Fontan procedure, the baby is no longer blue (cyanoptic). I have seen Cameron with his lips very blue and a few times the entire area around his mouth. It mostly happens when he’s really cold or exhausted from playing too hard. I have had the question(s) asked ‘Is this the last surgery to fix it?’ Well we hope! However, some patients may need more surgeries in their 20s or 30s if they develop hard to control arrhythmias or other complications of the Fontan. If complications are too severe sometimes heart transplant is the next option and that’s always difficult to say or explain but it’s a possibility with these cases.

Again, there is so much information out there on HLHS and other CHDs that we could post for pages and pages but for now this is our focus. Even as a Heart Mom I still look up everything and will never assume I will fully understand it all especially when it comes to all the medical explanations. However, it’s always been more comforting to have some of the answers and expectations then to be running into everything completely unaware and feeling its unexpected when it’s come to handling this entire HLHS journey.

It was hard to hear that Cam will be going to surgery again even though I knew it had to happen. The idea that he will have to go through another heart surgery makes me mentally and physically sick as a Heart Mom. However, it’s all out of our control and the only thing we can do is be strong, Pray and be positive for Cam. We always appreciate the support and prayers for our family, I can never thank you all enough again and again and again!

Speaking of Happy Hearts… Cam got his heart’s desire to not only touch a big real monster truck but actually get inside one AND take a joy ride around the block! We are so grateful to all who were involved with giving this extreme experience to Cameron, the joy you could see in his heart was incredible! Daddy even said it’s an awesome experience for him too and he was all to happy to be put to work changing out the tires. It silly funny but Cam actually likes the broken Monster Trucks too, ones with the tires wheels off or the ones without the body and just the frames or skeleton. I cannot explain the fun and happiness for Cam but hope these pictures help! A Special Thank you: Sudden Impact, Shock Therapy, Chiller and Ground Pounder!!!

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January 2014

6 Feb

Happy New Year!!!

Cam and his fellow heart warrior Dylan took pictures with the Mayor holding a proclamation recognizing CHD awareness week in February for Mandeville, La! We also have a heart walk to promote and generate CHD Awareness coming up March 29th @9am-12pm in Mandeville, La at Fontainebleau State Park. We will be bringing Cam and would welcome anyone else to join us in the walk to show support for Team Mogg. We will have a sign up for the walk if you want or just email us babymogg@gmail.com. I’m working on a cool T-shirt design for the team but still have to find a place to order them. I will post again when the T-shirts are ready with a picture and information.

Our next Cardiology appointment is on February 11th and we will post results afterwards. I am nervous about this appointment because Cam’s weight, age and most recent conditions will bring the 3rd surgery, the Fontan, up for discussion. It makes this Heart Momma sick to her stomach and everywhere else to think about it. However, it’s going to happen and we need to be prepared and ready to handle it for him.

On a fun note we took Cameron to the Monster Jam show in New Orleans. If you didn’t already notice Cam loves Monster Trucks to the extreme! Cam watches the DVD special from last year’s Monster Jam racing events over and over again. We told him the Super dome was where the Monster Trucks lived and we were going to their house to see a show. We went early to the pit party where you can meet the drivers but really we stood in line to let Cam just touch the trucks which he loved! Weird but I think he really enjoyed playing in the dirt in the pit because it was the real monster trucks race track. We had great seats and he really enjoyed the day and night! On the way home he asked to go again to the show, and we can’t wait to take him again just to give him that extra joy!

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