Archive | August, 2014

Fontan Date Changed to October 2nd, 2014

8 Aug

Yes we were on the schedule for the Fontan surgery August 21st BUT it has recently been moved back to October 2nd 2014. The pre-op date will be October 1st.

Cam was sick the other week… I took him for a check up over a runny nose since surgery was getting closer and we need to be careful with his condition for open heart surgery. I was hoping the runny nose was just allergies, but I got sick not long after Cam with the same runny nose and it was miserable. It could be serious if anyone goes into surgery with any infections. The heart and lungs are important with this surgery and a cold could be deadly. I found out any infections are a 2week wait for surgery and any viral issues 4-6week wait for heart surgery. I guess I exposed Cam somewhere along the way into that cold (Yes I am upset with myself that it happened as I had let some of my germ guard down and this is an important surgery we are waiting on). It was suggested to keep him well long enough to make and hold the new surgery date which may put a dent in some of our public and social interactions. Anyway, now we wait until October for the Fontan surgery and hope we don’t catch anything else during the opening of flu season next month. Thank you all for the continued support and prayers for our family we appreciate it!!! I will post if there are any further changes…

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July 2014

7 Aug

Well we previously had a big post for Cameron’s sedated Catheterization from July so this will be a post of pictures of fun and some other events we had last month for our journal…

Cam had a great 4th of July at Camp Hannan and was a big source of entertainment with his Super Hero costume changes and wild play. We also brought Cam’s Ultra Croc water park to the camp for some added fun. However, I feel the young adults had more fun doing relay races which they all felt the pain of being older afterwards but hey Cam enjoyed the show. We enjoyed a boat ride, golf cart rides and went to a fun festival out there with some big boy rides. The entire weekend was a joy to share with family and friends!

There were many nice play dates at home with some friends which we appreciate y’all’s time coming out, the company was amazing and we enjoy the activities. (I don’t post all pictures of play dates here in case anyone has issues with public blog postings of their kid’s pictures which I respect. Some are on my Facebook page which has some photo limitations by friends but anyway… If there is an issue just message me I would understand.)

We mainly play Super Heroes powing bad guys most days and occasionally we try the Doctor costume, painting and Pizza Chef with flour fight, we just really enjoy Cam he is a real character. We went to a car show in old Covington which was nice to share with Daddy. We celebrated Daddy Mogg’s birthday with an homemade Angry Bird gram cracker s’more chocolate cake with marshmallow eggs, yum! Cam unfortunately fell by the pool and busted his face one weekend, but he is ok aside from a few gashes on his face and head.

We received some information about Cam’s upcoming surgery and it includes a required fat free diet after surgery… Honestly, I have created a monster when it comes to Cam and eating; because I have chased him, begged him and bribed to get him to eat anything at meal times. All he wants is that milk cup of pediasure and I’ve started the battle to push it off here and there especially overnight. But it seems like the more attention I give to taking it away the more he fights to keep the milk cup around. I feel the milk cup of pediasure is keeping his weight on now and weight is important for this upcoming surgery, but it will make for a nightmare to lose cold turkey after surgery with the fat free diet requirement. Anyway we will handle that issue as it gets closer to the date which I need to post an update on that matter soon (Deep sad sigh!)

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