Archive | July, 2012

EEG, EKG and Echo with sedation

28 Jul

Cameron had a EEG, EKG and Echo done Friday and he was required to have sedation via an Iv line. Yes Momma Mogg was upset about the Iv line because he has enough holes and been through enough; however it was necessary to get the best results from the EEG and I know he would not have cooperated the entire time. The EKG and Echo are a normal test on his heart functionality but the EEG will test the electrical activity of the brain. We noticed Cameron was having a spasm with his left arm raising and tilting his head to his shoulder. It was random and only for a few moments and it had appeared a few times stopped but came back around a second spurt. Due to Cam having multiple surgeries especially two major heart surgeries we felt it would be best to check on him with the EEG test rather then wait for something more dramatic to appear. We are all hoping the results come back showing his normal brain activity and no signs of trouble. Anyway I don’t see any signs of him having trouble learning during playtime or just growing reaching milestones when he’s ready. Cam is around 21lbs pulls up on everything crawls around everywhere not yet walking on his own but wants to and he can take good steps with us holding only one arm for balance. However, I’d rather be safe and get the test done then be sorry just in case we need him on meds or anything else to balance things out for him. He’s really doing amazing for everything he’s been through and such a beautiful strong personality blossoming right in front of me everyday we are truly blessed!

Little Cam the man is playful all day and late night loves outside and water play just being an all around busy body. Feeds are normalish now we aren’t concerned about fats anymore still on regular baby formula for a few more months since he had a longer period without. We are done with giving him the diuretic lasixs which is awesome and will save on those extra wet diapers. I try to share as many pictures as possible mostly for the stalkers, but to those who have met him know they don’t do him justice the little angel is just incredible! Again all support and prayers for our family have always been appreciated and much welcomed through these hlhs times…

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Happy 4th of July!

4 Jul

Our one year old family photos by Jb… She is amazing check out her other work @ http://www.justbephotojennic.com!

We adore the ones taken with Dylan Dishon our heart family neighbors and friends http://www.dylansheart.com thank you!!!

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