Archive | August, 2012

EEG Results

16 Aug

Cameron’s EEG results came back fine from what I understand they tell me the impression from the test was probably normal in sedation sleep, I guess that’s the way they leave things open ended. The Doctor said they didn’t see anything that would cause an alarm or follow up with Neuro and there is no answer to what spasm I saw. They also said if the spasm comes back I can bring him to stay there in a room or suite until they can get it recorded on their machines to study.

We also had a Pediatrician office visit last week. She suggested an MRI if I do see the spasms come back to look further into why he was moving that way. We are behind on his vaccinations so now we are doing two at a time. I am having difficulty with getting him to eat meals and they said we can do half formula and half pediasure per bottle to help with his growth and diet. He does not walk on his own yet but can hold one hand on us and stomp down a path like a champ.

Cam still wakes up at least once a night sometimes twice for a small bottle. I’m trying all kinds of foods different flavors, textures and methods. Cam seems to want to play with the food or have his own plate and fork just like normal kids; but I’m over here saying I really need to keep your weight up, please eat. He did get his bite of first cake and has been labeled a cookie monster. Anyway we don’t have any current restrictions for anything besides the medication schedule and no cardiologist appointment for two months until his next echo. If anything else comes through we will be sure to post… I have to say Cam is still blossoming and thriving as a warrior he amazes us every single day!

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