Archive | December, 2011

Fun @ Home

31 Dec

Cameron had a few chest X-rays this week and today all of which looked good enough to let us go home again and again and again and again. We are fine to travel back and forth just to be able to go home for the holidays and enjoy the peace outside the hospital. The remaining left chest tube is still draining and the only plan is to give him time to heal. We are grateful to wait the time in the comfort of our own home.

Cameron is still going through his many Christmas toys but I can still tell he misses the attention of people being such a sociable 6 month old. When we go for his Doctor appointment all the nurses at the desk greet him and he just lights up, they keep saying he’s already a ladies man! Really? Also, we wanted to thank everyone who sent a gift for Cam if we hadn’t had a chance to call yet as the little man has been most demanding leaving no extra time between cleaning bottles, making formula, pulling meds, cleaning clothes and all if the other general chores for us to catch up with after being at the hospital for two months. Anyway our next appointment is Tuesday and hopefully the drainage slows down enough by that time.

Cameron, Nick and I wish everyone especially stalkers a Happy New Year!

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Home, Hospital, Home Again

29 Dec

Well we have been a busy bunch this week… We were discharged last Friday by a miracle from the CICU with two chest tubes just to enjoy the holiday weekend. We went in Monday to the hospital for a chest X-ray and Doctor appointment then amazingly sent home again, and we drove back to Covington from Chnola with orders to come back Thursday for a check up. However, we had some concerns about his chest tubes with him being so agitated so we went back in Tuesday for another check up. They decided things looked okay as well as removed the original right chest tube since the drainage had a steady minimum drainage. Cam’s right chest tube is now gone and we only have the left chest tube remaining from this event with the pleural effusion(s). The left side is still draining 20-30ml daily but if we can get one side to stop I’m sure the other isn’t far behind it, we hope! Today we go for another chest X-ray and Doctor appointment and we are hoping we can stay home again for the holidays and return after the new year.

Why were we busy you ask? King Cam is demanding when it comes to attention. Cameron was thrilled to be home and no longer aggravated every hour or so at the hospital and Mommy was happy too; but Cam still hasn’t been his full self with a controlled schedule in regards to sleeping. We had an exhausting holiday weekend and a few trips to the hospital this week for appointments not to mention he is teething and miserable. Also, we have a wrecked house from Christmas everything as well as the fact I haven’t been home in two months. Yes we have baby origel for his teething but that’s a struggle to use and he still gets fussy and out of control sometimes. Mommy was up until midnight trying to console him and get him to bed because we were up for hours. We are going through many of the Xmas toys left for the good little man and he is enjoying them. On a similar note: I can tell he really misses those strolls around the unit visiting the staff and others. I tried playing with his toys and then bathing him to get him fully ready for bed and I gave him all his meds as well as a bottle with no such luck getting him to lay down. He screamed and cried then I called for Daddy to step in when all of my tricks didn’t settle him down (singing, rocking, dancing, silence, sitting, standing, music, bedding and diaper changes). Daddy got up around midnight with us being loud all night keeping him up too and instantly rocked him to sleep (go figure) as I passed out from exhaustion too. I didn’t know it was so tiring to play and be up all night with a 6 month old my goodness how Cam has aged me 😦 Anyway we would like to thank everyone for their patience on our postings, and the continued prayers and support that Cameron will overcome this issue and finally get some peace.

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Christmas Time

27 Dec

We had a wonderful holiday weekend I will have to get more pictures from family and friends because I was holding Cam most of the time. We had a check up on Monday and the chest X-ray looked ok but we have another appointment today to check again with the Doctor. The drainage has slowed down an amazing amount even with all the traveling activity. We are pulling such small amounts and are very excited about the progress. We will post more details as soon as we hear further results and if we get any other orders changed for the little Santa Baby.

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HOME for the Holidays

24 Dec

By a miracle we were released from the CICU Friday morning at the crack of dawn so that we could be home for the holidays. We had so much going on so fast to get everything settled and ready to hit the road with ordering meds and special care for the chest tubes which were left in Cam. They trained me again on how to aspirate the chest tubes and gave us supplies and the full kit of things needed to care for them over the weekend. We are required to return Monday morning at 8am for a chest xray and doctor appointment to review the fluid levels and positions of the tubes. The hope is they will stop draining and get removed soon.

Mommy was a mess getting ready to leave and scared to drive home so Grandma Mogg (Aka Crusty) had to pick me up. Daddy reassured me that we would be fine at home and he was getting things ready. Daddy suckered me emotionally that Cam would want to be home for his 6 months birthday and wake up Christmas morning in his room at home with presents under our plastic tree… Yes there were many mixed tears of joy, relief and fear of being away from the hospital but the second we got home the sweet release of peace came over all of us. Cam was such a happy man to be home he started giggling again at random things like sitting in his swing and playing with some of the same toys from the hospital.

It’s incredible to see how fast the day turned around with the early morning news because we went through the mill to get out of there. There was no going back to sleep after the 5am xray and 6am meds when we got the news at 7am trying to get us to leave for noon. It was crazy stuffing the car with all the toys and our clothes into my already full trunk since we have been there for almost two full months. We had to order meds and that special formula needing it express shipped over the busiest holiday weekend yeah rough and expensive but medically necessary! Daddy handled that task while Tricia strolled Cam around the CICU one last time to give the nurses a heartfelt thank you and happy holiday good bye. Godmother, Laura Mogg and I packed the car with all of our stuff from the CICU room along with many gifts from the wonderful CICU Staff.

It was a flood of emotions just to walk out of the doors at Children’s Hospital again then pull into our driveway and going into our home. Daddy spent all day cleaning and preparing the house for our arrival (an amazing man might I add because he had to handle weeks of dishes and laundry I never got to yet)! We had some much needed naps after trying to unpack what we could and settle down. The day was long but well enjoyed at home and we are most grateful for the opportunity given to us by the Doctors and Staff at Children’s Hospital New Orleans THANK YOU!!!

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Happy Holidays!!!

23 Dec

Here is a sneak peak at Cam’s Midnight Xmas Mommy & Grandma Mogg’s Photo Shoot in the Chnola CICU… More snaps to come this weekend and maybe better less blurry ones when Daddy gets here lol!

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Boarder Status Again

22 Dec

There have been a few updates for Cameron, his drainage has slowed down a considerable amount. The right side which was the original pigtail from Thanksgiving only put out a few mls yesterday and today so its almost to where the doctors might consider removing it soon. The left side is still draining a good bit but not as much as it was originally since they put it in Friday, it went from 90>70>50>40. The decline is very promising for us and we are excited to see the trend. We have been changed back to a boarder status so the vitals are only due every 4 hours which gives us a bigger window of sleep at night. The CICU nurses have been very considerate when he is sleeping to wait until the last minute to get the vitals or have me give him his meds due.

Cam is getting a half scoop of protein powder split into two feeds a day and I think this is really helping to give him something extra in his feeds. The zero fat formula tolerex he is currently required to be on is like water and it really doesn’t hold onto him at all. He didn’t like the flavor of the half scoop of protein in one feed… go figure we know he’s a picky eater which is why we split it and it’s the most he can have in a day per dietary. We are still on a daily total fluid limit of 750ml with his feeds and running a tight line each day eating the full amount allowed and just hoping he doesn’t want for more before the next shift at 7am. I have been stressed trying to keep him on a schedule of 3 hours but it seems whenever we have vitals, meds or his respiratory treatments it makes him furious that we haven’t fed him enough. I dread bath time the most because I’m always low on feeds by the night shift and he wants a big bottle for bedtime so bad and man do I want to sleep too. Also, we have the daily 5am xray which is the worst time to wake him up without a bottle but they need them ready for the doctors’ rounds in the morning. I keep telling myself that we can go home sooner if we just keep to this limit but its still hard to see his desperate cry for the bottle and he’s been through so much.

Santa has been dropping off gifts it seems like everyday we have a pile of them in the corner now, but its still not enough to keep him occupied in this room. We have glowing globes, glowing turtles, movies, musical instruments, chew toys and a glow worm. We started taking him out in the stroller again; but its much more difficult with two chest tubes to get him out of bed, and so much more difficult to hold him comfortably without feeling like I’m hurting him by pushing on the chest tubes. He was called a social butterfly by one of the nurses and I really liked the comment because he really enjoys strolling around greeting all his nurses with bashful eyes and sweet smiles. Everyone says how adorable he is and I can’t argue I’m addicted to the doll myself! Anyway at least he can get out of the room and we can roam the halls late at night when all the crowds have gone to give us some other scenery. I’m not sure what we would do if we were home because he really does enjoy the attention and action. We sometimes sit by the busy doorway of the CICU to catch all the action of people coming and going all day and he hangs out with Mommy so much that I’m boring already my goodness…

We are still just waiting for the areas to stop filling with fluid and when the time is right they will remove the chest tubes. Again, no timeframe was given it’s all up to his body to react to the issue and seal the areas once they dry up on their own. If there are any other details on our situation I will post as soon as possible; thanks for the most generous support and prayers for our family for the holidays we appreciate the thoughtfulness!

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Cam’s Sunday, December 18th, 2011

19 Dec
Sunday, December 18, 2011, 5 months, 25 days old (25 w):
Sleep: 8h50m (6x, max: 4h9m, Int: 2h10m)
Diapers: 15 diapers (8 BM, 14 Wet, Int: 1h35m)
Bottle: 735 ml (8x, Int: 2h52m)
Cameron starts sleepingat 11:33 PM by Amanda Mogg

Viagra/Sildenafil (6 hours): 2.4 ml
at 11:32 PM by Amanda Mogg

Lasix (8 hours): .5 ml
at 11:32 PM by Amanda Mogg

Aspirin (12 hours): .25 tablet
at 11:31 PM by Amanda Mogg

Cameron’s Bath Time
Nurse J helped me because he was a fussy mess of a mad man…
at 11:00 PM by Amanda Mogg

Cameron’s weight: 14 lbs 8 oz (9th)
at 11:00 PM by Amanda Mogg

Mylicon: .3 ml
at 10:58 PM by Amanda Mogg

Tylenol: .9 ml
at 10:58 PM by Amanda Mogg

Cameron had a poopy and wet diaper
Bath Time
at 10:58 PM by Amanda Mogg

Cameron drank 70 ml of formula
He will get meds now n have 206ml left for the night…
at 10:57 PM by Amanda Mogg

Cameron had a poopy and wet diaper
at 10:14 PM by Amanda Mogg

Thanks for the chocolate crusty (image2.jpg)
at 8:48 PM by Amanda Mogg

I’m leaning over to get Mickey (image3.jpg)
at 8:47 PM by Amanda Mogg

Cameron had a wet diaper
at 8:46 PM by Amanda Mogg

Cameron drank 100 ml of formula
at 8:23 PM by Amanda Mogg

Cameron slept (28mn)
from 7:40 PM to 8:08 PM by Amanda Mogg

Cameron starts sleeping
at 7:40 PM by Amanda Mogg

Cameron had a poopy and wet diaper
at 7:17 PM by Amanda Mogg

Cameron had a poopy and wet diaper (Medium, Mucousy, Yellow)
at 6:39 PM by Amanda Mogg

Viagra/Sildenafil (6 hours): 2.4 ml
We lost some when Crusty medicated the bed…
at 5:58 PM by Amanda Mogg

Lasix (8 hours): .5 ml
at 5:58 PM by Amanda Mogg

Omnicef (12 hours): 1.6 ml
at 5:57 PM by Amanda Mogg

Enalapril (Daily Dose): .5 ml
at 5:56 PM by Amanda Mogg

Cameron drank 80 ml of formula (15mn)
from 5:35 PM to 5:50 PM by Amanda Mogg

Respiratory Treatment
at 5:48 PM by Amanda Mogg

Cameron had a wet diaper
at 5:48 PM by Amanda Mogg

Playing,eating,treatment and tv (image4.jpg)
at 5:46 PM by Amanda Mogg


Cameron’s temperature is 97.4 F
at 5:25 PM by Amanda Mogg

Cameron slept (58mn)
from 4:25 PM to 5:23 PM by Tricia Mogg

Cameron starts sleeping
at 4:25 PM by Tricia Mogg

Cameron had a wet diaper
at 4:15 PM by Nick Mogg

Cameron had a wet diaper
at 3:08 PM by Nick Mogg

Cameron drank 100 ml of formula
With half scoop of protein
at 3:07 PM by Nick Mogg

Cameron had a poopy and wet diaper (Small, Mucousy, Mustard)
at 2:14 PM by Nick Mogg

Cameron slept (1h7m)
from 12:59 PM to 2:06 PM by Nick Mogg

Cameron starts sleeping
at 12:59 PM by Amanda Mogg

Cameron’s temperature is 97.2 F
at 12:19 PM by Amanda Mogg

Cameron had a poopy and wet diaper (Small, Runny, Mustard)
at 12:15 PM by Amanda Mogg

Tylenol: .9 ml
at 12:10 PM by Amanda Mogg

Lasix (8 hours): .5 ml
at 12:08 PM by Amanda Mogg

Viagra (6 hours): 2.4 ml
at 12:07 PM by Amanda Mogg

Aspirin (12 hours): .25 tablet
at 12:06 PM by Amanda Mogg

Cameron drank 95 ml of formula (10mn)
from 11:55 AM to 12:05 PM by Amanda Mogg

Cameron had a wet diaper
at 11:20 AM by Amanda Mogg

I don’t even want to sleep in the bed anymore!!! (image5.jpg)
at 10:42 AM by Amanda Mogg

Cameron starts sleeping
at 10:33 AM by Amanda Mogg

Cameron slept (20mn)
at 10:32 AM by Amanda Mogg


Cameron drank 95 ml of formula (35mn)
from 9:01 AM to 9:36 AM by Amanda Mogg

Check out my sun visor notepad! (image7.jpg)
at 9:17 AM by Amanda Mogg

Toot toot! (image8.jpg)
at 9:16 AM by Amanda Mogg

Cameron has Dr Apt Other
Lasix will be increased to 3 times a day & a 1/2 scoop of protein will be added to 1 meal for healing purposes…
at 9:11 AM by Amanda Mogg

Cameron had a poopy and wet diaper (Large, Watery, Yellow)
Jelly like poopy and it was in 3 diapers I changed in a row
at 9:05 AM by Amanda Mogg

Cameron slept (4h9m)
from 4:35 AM to 8:49 AM by Amanda Mogg

Lasix (8 hours): .5 ml
at 5:45 AM by Amanda Mogg

Zantac/Ranitidine (12 hours): .6 ml
at 5:44 AM by Amanda Mogg

Viagra (6 hours): 2.4 ml
at 5:44 AM by Amanda Mogg

Cameron has an Xray
at 5:43 AM by Amanda Mogg

Cameron starts sleeping
at 4:35 AM by Amanda Mogg

Omnicef (12 hours): 1.6 ml
at 4:30 AM by Amanda Mogg

Cameron had a poopy and wet diaper (Small, Watery, Yellow)
at 4:30 AM by Amanda Mogg

Cameron drank 95 ml of formula
at 4:20 AM by Amanda Mogg

Cameron slept (1h36m)
from 2:38 AM to 4:15 AM by Amanda Mogg

Cameron starts sleeping
at 2:38 AM by Amanda Mogg

Cameron had a dry diaper
Mostly dry but I changed it because he was so fussy?
at 1:57 AM by Amanda Mogg

Cameron drank 100 ml of formula
at 1:55 AM by Amanda Mogg

Playing with his feet too funny! (image9.jpg)
at 1:27 AM by Amanda Mogg

Respiratory Treatment
at 1:25 AM by Amanda Mogg

Tylenol: .9 ml
at 12:45 AM by Amanda Mogg

Viagra (6 hours): 2.4 ml
at 12:44 AM by Amanda Mogg

Aspirin (12 hours): .25 tablet
Spit some out
at 12:43 AM by Amanda Mogg

Cameron had a wet diaper
at 12:24 AM by Nick Mogg

Cameron slept (50mn)
from 11:15 PM to 12:05 AM by Nick Mogg

Done with Baby Connect http://www.baby-connect.com

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