The Story

The Love Story

Nick Mogg and Amanda Williams were married at midnight on October, 10, 2010 (10/10/10 for luck!).  Straight from the wedding they left to board a cruise ship for a week-long Caribbean Cruise honeymoon.  Mandy had to be forced out of her beautiful wedding gown to make her way to the airport.  She didn’t want the fun to end.  They had celebrated with family and friends at the Royal Sonesta hotel till dawn.  Everyone ate their alligator shaped wedding cake and danced to Nick’s totally inappropriate wedding playlist.

The Miracle to Be

Nick and Mandy talked about wanting to start a family soon, but never dreamed that they were starting one on their honeymoon.  However, when they learned of Mandy’s pregnancy, they were both jubilant and shared the good news with family members on Thanksgiving Day, who were also overjoyed about this new addition to the family.

Despite the usual discomfort, Mandy’s pregnancy progressed normally, until her physician sent her to a specialist in Baton Rouge because the baby was in an ‘unusual’ position.  That’s when the weight of the world came crashing down upon the young couple.

Nick and Mandy were told on February 16 that their unborn baby has a condition called HLHS (hypoplastic left heart syndrome), which is an extremely serious life threatening congenital disorder where the left side of the heart does not develop while the right side does. You can read more about HLHS by clicking here.

After explaining the condition and providing information on current treatment, the specialist suggested that they consider delivering the baby in Philadelphia and having the subsequent surgeries performed at Children’s Hospital there. After extensive consultation with specialists and surgeons, they have decided to have the baby in New Orleans, and immediately have the baby transferred to Children’s Hospital in New Orleans for the necessary surgeries and critical care required.

Devastated, the young couple suddenly found themselves living a nightmare.  The long and tedious search for information began and questions began to arise.  How are they going to provide the expensive surgeries and critical care the baby will require?  How will they pay living expenses through the long process?  How will they make ends meet if Nick cannot work during delivery, surgeries, and critical care?  And, most importantly, will their baby survive the recommended treatment, which involves no less than three surgeries before the age of 3?

What Can You Do?

While Nick and Mandy continue to grapple with the horrors of their reality, friends and family are coming together to help them every way they can.  Fundraising events are being discussed and planned in an effort to ease the financial pressure being placed upon the couple so that they can focus on Mandy’s health, which is paramount to the baby’s survival.

Here, at this website, you will be provided with information regarding upcoming events, where and how to make contributions, a means by which you may communicate with (or offer support to) the family, or just keep abreast of this struggle for survival.

All prayers are graciously appreciated.

Website kindly donated by I.T. By Design of Baton Rouge.

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30 Responses to “The Story”

  1. Courtney Garris May 6, 2011 at 12:05 pm #

    We are praying for baby Mogg, and mom and dad. May the peace of God reign in this situation and may God’s healing power be displayed through this little life.
    Love,
    Courtney, Luke, and Edison Garris

  2. Alex Dishon May 6, 2011 at 12:57 pm #

    To friends & family of the Moggs,
    My husband & I live right down the street from Nick & Mandy, and our son, Dylan, was born January 4th of this year with several heart defects, one of which being hypoplastic right heart syndrome. He was diagnosed prenatally as well with hypoplastic left heart. After birth, an echocardiagram showed that Dylan was actually hypoplastic right, but his heart was dextrocardia & he had transposition of his great arteries. The fetal echos are much harder to see this much detail. We also had Dylan brought to Children’s NOLA where he had his Norwood done on January 20th. Dylan had many up and down moments, as to be expected, but was discharged on lucky St. Patricks Day March 17th. We are currently back at Children’s where his Glenn procedure was successfully performed yesterday and Dylan is doing great! We have been keeping Nick, Mandy, & baby Mogg in our prayers everyday. But I want everyone to know they are bringing their precious baby to the right place. Children’s NOLA is AMAZING! The doctors & nurses in the Cardiac ICU are outstanding!! We have developed such close relationships with them all & they give the most personal attention & care to their patients. Dr Caspi & Dr Pettitt truely are miracle workers & are so particular & thorough with their patients. Please visit Dylan’s website, dylansheart.com, to read about his story. If anyone has any questions, please contact us without hesitation. Baby Mogg will be so strong & resiliant! There will definitly be extremely hard times, but he or she will be home laughing before you know it!

    • Mitchell Mogg May 21, 2011 at 10:49 am #

      Thanks for being their for Nick and Mandy.Will pray for Dylan too.

  3. Dad May 7, 2011 at 8:26 pm #

    Being a Mom will be an experience of unknown moments in the future to come. Yet they will bond you as a familly stronger each moment. We pray for you and your familly to be.
    Love You
    Dad

  4. Mary Bodin May 18, 2011 at 1:10 am #

    Nick, I am a friend of your mother’s and I am praying for your family, that God will give you all the strength to endure what lies ahead. Have faith and that will keep you strong. I will continue to pray for Baby Mogg every day!

  5. Deb May 21, 2011 at 8:11 am #

    Nick, Mandy & Mogglett 🙂 You are deeply loved and valued — each of you. This has got to be one of the worse times but the best time too. Only know that I believe with my whole heart Psalms 139 and it is my belief that Romans 8:28 is true.

    Know that you are loved and I wear my Baby Mogg Have a Heart Help a Heart bracelet proudly! Dad gave me his but I want to know where can I get more?

    • Ann June 24, 2011 at 7:48 am #

      Is this Deb of Mitch and Debbie from Celebration Church?

  6. Karen S. Babin May 21, 2011 at 10:33 am #

    I know God is with all of you and Baby Mogg. I pray He keeps you strong and comforts you when you are not. God bless all of you and keep you in His care.

  7. shan arkle May 21, 2011 at 11:30 am #

    I am a lifelong friend of your dad Mitch Mogg my prayers are with yall and to let yall know there is much power in prayer especially with one or more and it seems like yall have many praying and with hopes that there will be many more. God Bless yall and your little innocent baby, my prayers are with you.

  8. Tammie May 29, 2011 at 7:14 pm #

    Sending prayers to you and your baby…as well as the rest of your family. We went through a similar situation with our daughter. We found out at 18 weeks that there was a problem with her heart, but we weren’t told exactly what it was until 4 weeks later when we went for a Fetal echo at Boston Children’s Hopsital. Mackenzie is now 2.5 years old and doing fantastic, she has had 2 of the 3 surgeries and we are scheduled for the Fontan in 2 weeks. We have been very fortunate that we have not had any other hospital stays except for the surgeries, and no major illnesses. It is a long road and I can’t tell you it will be easy, but it will be the most fulfilling job you will ever have. these little ones have been put here for something special. We always have people coming up to us saying “God Bless” and “She’s an angel”…people who have never met her before and just see her in passing, will tell us “she’s a special one” We’d like to think so 🙂 Sending many prayers from Mass…

  9. Monica May 29, 2011 at 7:15 pm #

    Hi Nick and Mandy, please know that your baby will be in excellent hands with Dr. Caspi and CHNOLA. He fixed my baby girl’s broken heart last year. Praying for y’all and your special heart baby!!

  10. Racahel Weeks May 29, 2011 at 7:27 pm #

    I was given your website by a fellow heart mom. My son Bobby also has HLHS which we learned of prenatally after the OB “could get a good picture of his heart.” I understand the devastation and worry that you have as you journeyed through pregnancy. Bobby, 4, just had his Fontan in March 2010 at CHOP and is thriving. I would love to talk to you more and share our story. Please email me at heartmom316@gmail.com if I can help. Please know your are in my prayers.

  11. Millie May 29, 2011 at 8:28 pm #

    My son has HLHS also. He is almost 7 and doing great heart-wise. We’ve had some setbacks developmentally and with eating, but every journey is different, and every child is different. We celebrate every day. 🙂 Look forward to following your little ones journey.

  12. Kathy Baker May 30, 2011 at 7:04 pm #

    Nick and Mandy,
    I was given your blog from a fellow heart mom. My son Jacob was born with HLHS March 23, 2010. We live in WV but traveled to Children’s Hospital of Philadelphia for his care. His case was complicated even more by having an intact atrial septum. I am happy to say he just celebrated his first birthday and to look at him you would never know he has been through so much in his little life. He loves life, laughs and smiles all of the time and is hitting milestones on time. This journey is a rollercoaster but it is so worth it. Please let me know if I can answer any questions.

    Jacob’s story is at: jacobsspecialheart.blogspot.com

    Heart Hugs,
    Kathy

  13. Debi Sharkey June 2, 2011 at 9:16 pm #

    Thank you for sharing your story. You are all very brave! I am praying for you all. May you experience the amazing power and peace of God through every step. It sounds like you have a wonderful support system of family and friends who love you and will walk through this with you. Thanks again for sharing. Your courage and faith are inspiring.

  14. Susan Indest June 3, 2011 at 7:51 am #

    You all are in my prayers and I will donate as I can. Many blessings.
    Susan Indest

  15. Ashley H. Garris June 4, 2011 at 7:31 pm #

    I am sorry I could not stay longer today at the garage sale. My seizure medication is contraindicated with direct sun light. I am posting on facebook and will start making events on fb to keep spreading the word. Ya’ll are in my thoughts and prayers and on my heart. I know what statistics and doctors say, but I believe with all my heart that everything will work out just as it should. God is in control and although the doctors are full of knowledge and we must respect them, they are not God. God will provide and prevail. I pray that no matter what the outcome, God gives everyone the strength and courage to pull through this. This baby isn’t even born yet, and look at all the love and support surrounding this precious life! It is remarkable! My love goes out to you guys. If you need any help with any other functions, let me know. I’ll keep posting on fb and passing out flyers 🙂 Love, Ashley

  16. Vera Soong June 5, 2011 at 1:48 pm #

    Baby Mogg and his parents and family are in my prayers. Look for an envelope from me at the Whitney. I am a GKHS 1977 graduate and I saw your story on our FB page. Have faith in our Lord!!

  17. theresa fontenot June 8, 2011 at 9:18 am #

    my prayers will be with all of you and I will encourage my friends to support this family. Masy Jesus take over and guide this child and family through this illiness love in Christ aunt theresa

  18. Kristine Campagne June 9, 2011 at 3:37 pm #

    I hope the best for Nick, Amanda, and their baby! I luv yall both!

  19. Ann Musacchia June 24, 2011 at 7:53 am #

    To the Moggs,
    I am praying for all of you. May the grace of God cover you and this pecious little one the kLOrd has blessed you with. Always remember the Lord is there and He will give you the strength to do whatever is needed as long as you trust Him.

  20. Carolyn (Kay) St. Philip June 24, 2011 at 11:06 am #

    Nick and Mandy,
    Just a few lines to say that I will be praying for you and your little one. Please know that God will be watching over you and may He give you strength and comfort every day as you make this journey.

    Kay St. Philip

  21. Donna S. Dishon June 24, 2011 at 6:28 pm #

    My name is Donna Dishon, Dylan Dishon’s grandmother. Alex has informed me that Baby Mogg was born and is now Baby Cameron. I am donating blood at The Blood Center on Saturday in Cameron’s name. I know from experience and every penny, drop of blood, prayer have given our family continous support. Hopefully in coming months Dylan and Cameron can meet and in future months will develope a friendship since both of them are very special boys!

  22. Erica Janssen June 29, 2011 at 10:41 pm #

    First Congrats to the Family on the birth of Baby Cameron! Amanda, know we are thinking of you during this journey and praying for his good health.

  23. Laura July 12, 2011 at 9:01 am #

    Childrens is the best place and has been since Rebekah spent almost the 3 year of her life in that hospital. Your cousion Rebekah healed great and so will your child. God never gives you more than you can handle. Keep your faith and know their is a reason for everything. You are in our prayers and thoughts. If you need ANYTHING please call me 931-8504. Laura Williams Calcagno

  24. Sally Royston July 12, 2011 at 1:04 pm #

    Nick and Mandy,

    I am a vendor of your mom’s in Portland, OR. I have Cameron in my thoughts and prayers. Keep up your strength but make sure you are resting/talking care of yourselves too.

    Sally Royston

  25. Cheryl Lucia July 26, 2011 at 8:26 am #

    My love, thoughts and prayers are with Nick, Amanda and their precious baby. Also I send love and prayers to Mitch and Debbie. I know how hard this must be for your family but God always has a plan and obviously this has brought you all closer as a family. May that little baby grow up to make a difference in this world. God has a plan for him, trust and have faith.

    Love to all!

    Cheryl

  26. Alecia Galatas September 7, 2011 at 2:22 pm #

    Mandy and Nick,
    I am so sorry that you guys had to go through such a difficult time. I am so happy for you all that you are blessed with little Cameron today. I know you still have struggles to face but nothing could compare to what you’ve been through so far. Good luck with life. I wish the best for you all. And when Cameron gets older and can understand what he has over come, I am sure he would love to see all the people on this website that was here for support for him and his family in a time of desperate need.
    Best wishes,
    Alecia and Glenn Phillips

  27. Chuck December 16, 2011 at 9:23 pm #

    Praying for your family! Merry Christmas!

  28. Chayce1112 January 27, 2012 at 12:38 pm #

    hi! i just wanted to let you know i am following your story! i am soo touched and extremley proud of this little guy and both of you! I feel like i share my story with you, since you have been so brave to share yours! if maybe i can give you the since of hope as you have given me, and know that there is someone out there that feels your pain and understands your struggle. In march 2010 me and one of my best friends both found out we were preggo me with identical twins Suprise! and her with her second child. well come to find out days apart we found out we were having boys, my sweet boys, Bryce & Chayce had a rare disorder called twin-to-twin transfusion syndrome, then we found out her lil guy had HLHS! we were sent to cincinatti childrens hospital where they knew a little bit more about my boys disorder, we went back and forth(we live in louisville,ky) numerous times, went through numerous procedures to try to save our boys, Bryce the bigger of the to was at risk for heart damage and Chayce our lil tiny fella was just in danger period hardly receiving any nutrients! well on 8/9/10 we underwent a very new surgery as this was my boys last chance of survival. The next morning 8/10/2010 we had an ultrasound to reveal Chayce the weaker, smaller of the two had pulled through, but our sweet baby Bryce, his big brother had fell asleep with his thumb in his mouth, we were told to go home and prepare ourselves to lose chayce, while he had jumped a huge hurdle, a miracle in fact(he was the smaller weaker twin they almost never make it) he was only 24 weeks and he more than likely be born in the next 10 weeks and could not survive. well back home our sweet lil Jayden was progressing along docs had already warned that he would prob never be born do to his severe hlhs. but we hoped and prayed for both our two remaining boys to pull through, We had our tiny angel Bryce to look after them. fast forward 10 weeks, they decided to do a c-section and Chayce was was born 11/12/10 at 34 weeks 3lbs 5oz and he scored all 9 and 10s and was breathing on his own! we stayed in nicu 20 days and he came home! we have small struggles but he amazes me everyday! he is a True miracle. Jayden was taken c section 12/ /10 he went through the first surgery, they said he would not make it, but he did he was then placed in the picu and for the next two months he fought and fought harder than i have ever seen anyone fight, everyday they said he won’t make it throught the night but they were wrong he did! but his tiny weak body could not take anymore and on feb 13, 2011 Jayden went to sleep and went to heaven to play with Bryce. eveyday i think of the boys we have lost and tank god for the one we have! i am so proud of all three of our boys they all fought soo hard, and Chayce continues everyday! they told me he wouldn’t breathe on his own, he did. They told me he would be mentally retarted he is not! they told us Jayden wouldn’t live a day he lived 2 months! you son makes me feel that same joy and pride everytime i see he has made it one more day, accomplished one more milestone! im am soo proud of you your husband and your sweet miracle everyday. i personally know how it feels to see your child go through anything, to take him to doc after doc, surgeries, and procedures! it sucks bad!!!! but im sooooo proud of you<3 thank you sooo very much for sharing your story! give your lil cutie face a big kiss for me and know I am here thinking, and praying for you everyday and i look forward to seeing lil man grow up big and strong<3 Jenn

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