Post Fontan Day 17-18 CICU

Friday was slow not much action and we thought Saturday would be slow too seeing as it was the weekend but we got a huge surprise. Early Saturday morning the Doctor came in the door of our room and said cheerfully ‘Let’s just take out all these chest tubes.’ We laughed lightly totally thinking it was a joke because the fluid was still draining a good bit. However, the Doctor returned again with the Nurses caring supplies preparing the room. We were all surprised and Mommy is nervous that we will need new chest tubes if most of the fluid returns. The Doctor mentioned sometimes leaving the chest tubes in will make the drainage continue, and if he needs new tubes they can put different ones in that can allow him better mobility then these big chamber locked chest tubes. Cam was given morphine and they finished the process of removing both remaining chest tubes with us waiting outside the room. Cam was upset and didn’t want them to take his wires but they took the right and center chest tubes out covering his chest with foam tape.

Cam rested most of the afternoon and that evening we tried to get him out the bed for a small walk. It was great to finally get him sitting up and Mommy melted as she finally got to hold him after all this time. Cam did not want to get out the bed and was scared to try to walk. He was really wobbly and his legs are very weak from staying in the bed so long. We made it just outside the room and back before Cam had a meltdown. We returned to the room with a surprise gift for Cameron which he enjoyed very much thank you mystery friend!!! We will continue to hope that the chest fluid does not come back and we stay chest tube free because that means we are closer to getting to go home!!!